[Philomath]

I know a girl with a condition that sounds very similar to the symptoms you are describing. She also at first struggled with people believing she had a problem, no one believed that she had what she has, because they thought at first she was making up that she was in pain and her doctor thought it was growing pains as well.
I think you should have this farther looked in to.
Dystonia is a nero-degenerative disorder and has varying types and severities. The girl I know has the form that starts in adolescence.
I'm not saying you have what she has, (There are many things that this could be) because I am not a professional, I am just stating what I know from my experiences and what I know.
I hope this helps and if you ever need anything, you can PM me and I will be very glad to help.