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Name: Dez
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Working/School while chronically ill - June 5th 2019, 04:19 AM

So I've been sick a lot since about August or September. I mean, nonstop. I'll have maybe a few days to two weeks without being sick and then something else happens. I even ended up in the ER about two weeks back because I almost passed out.

Right now nobody really knows what's going on with me. The tests they've run have come back negative but yet I'm living my life at the doctor with physical symptoms. I've been prescribed antibiotics for infections the doctors have noticed a few times and was put on steroids, but the steroids made other symptoms worse so I had to be taken off of them. And some of the symptoms are visible to non-doctors too (for example, I had a lot of painful gland swelling that JUST finally went down, and I'm fatigued beyond my depression :/) so I know I'm not entirely crazy. So, I guess that makes me potentially chronically ill.

But it's affecting my life a lot. In school I had to take an Incomplete in a class because I was too sick to do it. That basically means the professor gave me extra time after the semester ended to finish. It's affecting my grades in general and my learning.

I'm doing a required internship for school. I started Monday, and Tuesday I had to leave sick already because I got overheated and sweaty and thought I was going to puke, so I'm scared for the rest of the week. I'm bringing in a fan from home to plug in and keep me cool but my office window doesn't open. I need to get 150 hours before August 5, so my goal was to do 7 hours a day for 5 days a week, but I'm thinking of asking my boss if she'd be okay with me reducing it to 4 or 5 hours in the office 5 days a week and then letting me do the other 2-3 hours at home. But I'm so embarrassed because this isn't professional and it will make it hard for me to get work done. She's known me for quite a few years now and this isn't like me which I hope will help my case, but I'm still really upset over it.

I have a follow-up with my doctor tomorrow so I'm going to be asking her some questions about coping, but I know some of you have lived with chronic illness and I'm just wondering if you have any tools for me that can help me cope and still complete what I need to? I'm getting really desperate and miserable here and am so tired of this


Do you ever get a little bit tired of life
Like you're not really happy but you don't wanna die
Like you're hanging by a thread but you gotta survive
'Cause you gotta survive