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Adult Survivors This forum is for you to share your stories on how life has changed, how you coped with issues in your life and inspirational stories for others.

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Life has been something - April 1st 2022, 04:14 PM

This thread has been labeled as triggering by the original poster or by a Moderator. Please take this into consideration before continuing to read.

I just marked it as triggering due to health reasons!

Oh man, where do I begin? I forgot my username and password, and betting the email is gone too. I joined during my junior year of high school. I was not a very nice/good person back then, and changed now.


I went on to have a job till 2012, then ended up on SSDI afterwards. I have since found a nice remote part-time job, and am on a ticket to work program. Later in 2013, health issues happened... Low potassium and have chronic kidney disease. Flash forward to like 2019 or so, and have type 2 diabetes. I also later in 2020 got dx with sleep apnea too.

In 2020 I also have found out I have kidney stones badly, and am told I'd likely be suffering with them and they'll keep coming back.
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Re: Life has been something - April 1st 2022, 09:11 PM

It looks like a lot has happened since you have been on here last! It looks like you've made a lot of personal growth, which is great to hear. Sorry that you lost your old account though.

I'm sorry to hear about your health issues but I am hoping that they are being well-managed by you and your doctors.


Do you ever get a little bit tired of life
Like you're not really happy but you don't wanna die
Like you're hanging by a thread but you gotta survive
'Cause you gotta survive
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Re: Life has been something - April 3rd 2022, 12:55 AM

Welcome back! I'm sorry to hear about all the health issues you've been having. I hope you're getting the necessary support for them.
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Re: Life has been something - April 4th 2022, 04:04 PM

Thanks all. I can control my diabetes for sure. The kidney stones I am totally unsure of yet on what is suggested.
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Re: Life has been something - January 10th 2023, 11:42 PM

So an update on this topic!

My kidney stones are forever going to be a life long issue the urologist said. My kidneys both apparently look like a sponge kidney. It's called Medullary Sponge Kidney according to my research. I continue to see my kidney doctor and PCP as per usual alongside the urologist. I also was supposed to be seeing my GI doctor for follow ups, but have not the past 2-3 years. Oops!

Urologist seems to think a kidney transplant could maybe work, buuut I'm not on board for that at all.
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Re: Life has been something - January 11th 2023, 02:04 AM

I’m sorry that the kidney stones are going to be a recurring problem. I can understand not being on board with a transplant right now too. I hope that with routine monitoring that things will work out!


Do you ever get a little bit tired of life
Like you're not really happy but you don't wanna die
Like you're hanging by a thread but you gotta survive
'Cause you gotta survive
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Re: Life has been something - January 11th 2023, 07:44 PM

Wow, that's a lot to be going through. Are there other therapies they recommend other than transplant?


something burning?
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Re: Life has been something - October 13th 2023, 03:26 AM

Quote:
Originally Posted by Coffee. View Post
Wow, that's a lot to be going through. Are there other therapies they recommend other than transplant?
Medications, losing weight, etc will help for sure. Kidney transplant should be for people who need it like ASAP imo.
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